Living with a rare condition, such as wAIHA, can be a lonely experience. Finding a space to share your own, can help. This space is for all of our wAIHA Warriors who want to use their voices to connect with and empower their community. Use the form below to share your story with other wAIHA patients.
"The recovery process has been challenging, and like a roller coaster ride. My faith, the love and support of my family and friends, as well as sharing my story via social media, have helped me get through one of the most difficult, and scariest times of my life. My hope in sharing my story, is to bring awareness to this condition, as well as let anyone else know that goes through this, that they are not alone."
"Being diagnosed with wAIHA was scary, but it helped me prove my 22-year battle of whether I have lupus or not. Some doctors said I had lupus when I was in the hospital with bleeding issues, blood clots, and mini-strokes. Then, later they said I didn't have lupus and never did. I was finally diagnosed with the label 'other lupus', the kind that attacks your blood and causes ITP (immune thrombocytopenic purpura), HIT (heparin-induced thrombocytopenia), autoimmune hemolytic anemia, antiphospholipid then attacks your nervous system...I guess my not-so-good diagnosis was actually good in that case."
wAIHA Warriors are a 501(c)(3) organization with a mission to alleviate suffering and socioeconomic impact of wAIHA by fostering and facilitating collaboration in the areas of education, public awareness, research, and patient engagement.
If you would like to work with the Warriors to share your story in the community and in smaller setings, go to our website and sign up to become a wAIHA Champion. This group of volunteers is working on the frontlines to educate and activate friends, neighbors and community leaders in the fight.
wAIHA Warriors is a 501(c)3 charitable organization as determined by the IRS. A copy of our determination letter is available on request.
wAIHA Warriors does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.
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