Join us in New Orleans for the FIRST wAIHA Warriors Annual Meeting next March. Patients, caregivers, physicians and researchers will gather in New Orleans to discuss current and future treatments, access to care, Federal and State advocacy efforts and more. Most importantly, the Annual Meeting will allow patients to network and share their stories with other members of the community.
We'll be joined by internationally-recognized researchers, officials from the U.S. Dept. of Health and Human Services, and lawmakers who are championing the patient community in Congress. Speakers will address topics related to wAIHA, mixed AIHA and Cold Agglutinin Disease (CAD).
Schedule subject to change:
Friday, March 24, 2023
1:00pm – 5:00pm: Exhibitor Check-in/Set Up
3:00pm – 5:00pm: Patient Registration
5:00pm – 6:00pm: Reception with the Exhibitors
6:00pm – 8:00pm: Welcome Reception, Karen Jones, Ed.D, Executive Director
Saturday, March 25, 2023 (AIHA Awareness Day)
7:30am – 9:00am: Breakfast with the Exhibitors
9:00am – 9:15am: Welcome to the First wAIHA Warriors Patient Meeting and the First
AIHA Awareness Day – Karen Jones, Ed.D, Executive Director
9:15am – 10:00am: Humble Beginnings – Dr. Irina Murakhovskaya, wAIHA Autoimmune Hemolytic Anemia, and Pat Watson, Cold Agglutinin Disease
10:00am – 10:15am: Break with Exhibitors
10:15am – 10:30am: Keynote Address – Rare Disease Legislative Update and Opportunities for Rare Disease Legislative Action with Congressional Leaders, Joni L. Rutter, Ph.D.Director of the National Center for Advancing Translational Sciences, National Institutes of Health (Invited)
10:30am – 11:00am: Mental Health Resources for Rare Disease Patients, Dr. Stacey Feuer, PsyD, MLD
11:00am – 11:45am: How AIHA Changes Lives - Patient Advisory Board and Guests
11:45am – 12:00pm: The Importance of an AIHA Patient Registry: What Is It and Why Is It Important?
12:00pm – 1:00pm: Box lunch in the Exhibit Hall
1pm – 1:30pm: Dr. Panepinto, Director of the Division of Blood Diseases and Resources (DBDR) at the National Heart, Lung, and Blood Institute of the National Institutes of Health (Invited)
1:30pm – 2:00pm: Patient Assistance Programs for wAIHA
2:00pm – 2:30pm: Washington, DC Update, James Romano, Care & Cure Partners
2:30pm – 3:00pm: Break with Exhibitors
3:00pm – 4:00pm: Update on Current wAIHA Clinical Trials, Dr. Irina Murakhovskaya
4:00pm – 4:45pm: Closing – Karen Jones, Ed.D, Executive Director
4:45pm – 5:00pm: Break with Exhibitors
5:00pm – 7:00pm: Dinner
7:00pm: Evening Event
Sunday, March 26, 2023
8am – 8:30am: Breakfast Opening—Karen Jones, Ed.D, Executive Director, Speaker— Dr. Irina Murakhovskaya, wAIHA Treatment Comparisons
8:30am – 9:00am: Vitamins, Supplements and Alternative Medicine for wAIHA and wAIHA Treatment Symptoms
9:00am – 9:30am: Insurance 101 – Sean Powell and James Romano
9:30 – 10:00 am: Conference Closing – New wAIHA Warriors 2023 Programs
10:15AM-11:45AM: Medical Advisory Board and Patient Advisory Board Meeting
Renaissance New Orleans Pere Marquette French Quarter
817 Common St.
New Orleans, LA 70112
Our host hotel is located in the heart of the city and near restaurants, entertainment and visitor destinations. The wAIHA Warriors Annual Meeting won't be all work and no play – on Saturday night following the general sessions and breakouts, we'll explore this unique city
Registration is FREE for patients, caregivers, researchers and physicians. wAIHA Warriors is also offering a limited number of complimentary accommodations at the host hotel and round-trip travel stipends for patients and caregivers up to $600 for domestic travel and $800 for international travel. Recipients of the travel stipend must be:
Registration is now closed. For more information, contact Karen Jones, karen@wAIHAWarriors.org.
Exhibitors will be provided one (1) 6ft X 30in table in the exhibitor space for booth setup. Exhibitors should make their own hotel reservations; mention "wAIHA Warriors" to secure the conference room rate. Load-in at the host hotel will be on Friday afternoon, March 24.
For more information, contact Elizabeth Antjas, elizabeth@wAIHAWarriors.org.
wAIHA Warriors is a 501(c)3 charitable organization as determined by the IRS. A copy of our determination letter is available on request.
wAIHA Warriors does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.
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